#LIVEhighlights #TikTokLIVE #LIVE #audiobook #recording #spoontheory #autism #tired #media #communication #PhD Only chapter 5 and the concluding chapter to go and then it’s just relistening, editting, and submitting to my distributor 
#spoontheory
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Are you counting spoons? Are pacing?
My app might help you with this. It now keeps the history of your past days. This might help to find patterns. The history can be exported as CSV to send it to your medical practitioner.
#spoontheory #mecfs #ChronicFatigueSyndrome
https://apps.apple.com/de/app/daily-spoons/id6448132547?l=en-GB
App StoreDaily SpoonsImagine you measure the minimal energy you can spend during the day in spoons. Let's say you have some mental challenges and therefore the energy amount you have available during the day corresponds to 12 spoons.
Getting out of bed consumes one of your spoons. Breakfast takes another spoon from your…
Are you counting spoons? Are pacing?
My app might help you with this. It now keeps the history of your past days. This might help to find patterns.
https://apps.apple.com/de/app/daily-spoons/id6448132547?l=en-GB
App StoreDaily SpoonsImagine you measure the minimal energy you can spend during the day in spoons. Let's say you have some mental challenges and therefore the energy amount you have available during the day corresponds to 12 spoons.
Getting out of bed consumes one of your spoons. Breakfast takes another spoon from your…
Ermahgawd!!!
I found the OG article that started "spoon theory." I hadn't seen this in years. Am so jazzed.
https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
#spoonies #spoonTheory #spoonie #spoons #butYouDontLookSick
But You Dont Look Sick? support for those with invisible illness or chronic illness · The Spoon Theory written by Christine Miserandino - But You Dont Look Sick? support for those with invisible illness or chronic illnessPlease take the time to read Christine Miserandino’s personal story and analogy of what it is like to live with sickness or disability. Click HERE to download “The Spoon Theory” in PDF format. The Spoon Theory by Christine Miserandino www.butyoudontlooksick.com My best friend and I were in the diner, talking. As usual, it was very …
Michelin scars
A #poem about #chronicillness in two parts
—
i.
To take my daily piles of pills
gives me no kind of thrill:
«Rassemblez.»
The docs all say they’re not addicting
but it still feels deeply conflicting:
«Tablet-à-manger.»
The surgeons cut out half my guts
(which turned out to be rather nuts):
«Alors, sommes désolés.»
Today has been mostly about waiting.
And trying to store up some spoons for tomorrow's trip
These are not compatible.
I should be ...
Sorting out files for a meeting in 70 mins.
Organising a trip on Tues that will use more spoons than I have.
Finding any recipe to cook tomorrow for which I actually have ingredients.
Checking emails and doing loads of paperwork for the charity.
Scanning a page at a time of a 20 page doc before I post it.
Re that, fixing the new printer that scans faster.
Writing up the Death Cafe before I forget it.
Selling some books to help pay off the new scooter.
Ditto kitchen stuff.
And more.
I should be ... resting.
Cool cats wear masks 
Die Spoonie Witch Coven Kollektion ist für alle chronisch kranken, psychisch kranken und behinderten Hexen, die – laut Spoon-Theory – immer zu wenig Löffel in der Schublade haben. Mit den Charms und Stickern — wie diesem hier — möchte ich mehr Sichtbarkeit für Menschen mit Behinderung und chronischer Krankheit schaffen. Zu dieser Kollektion ist parallel der Blog-Artikel "Spoonie Witch Coven – Behinderte und chronisch kranke Hexen" auf hollenkraut.de erschienen.
#SpoonieWitchCoven #Hollenkraut #spoontheory #disabledwitch #autisticwitch #chronischkrank #witcheswearmasks #chronicillness #coolcatswearmasks #covidawareness #maskenrettenleben #maskebleibtauf
Die Spoonie Witch Coven Kollektion ist für alle chronisch kranken, psychisch kranken und behinderten Hexen, die – laut Spoon-Theory – immer zu wenig Löffel in der Schublade haben. Mit den Charms und Stickern — wie diesem hier — möchte ich mehr Sichtbarkeit für Menschen mit Behinderung und chronischer Krankheit schaffen. Zu dieser Kollektion ist parallel der Blog-Artikel "Spoonie Witch Coven – Behinderte und chronisch kranke Hexen" auf hollenkraut.de erschienen.
#SpoonieWitchCoven #Hollenkraut #spoontheory #disabledwitch #autisticwitch #chronischkrank #witcheswearmasks #chronicillness #coolcatswearmasks #covidawareness #maskenrettenleben #maskebleibtauf
Continued thread
alright, I do have to repeal some of the congealing anger.
I did get antibiotics, more prednisolone, a walk-in X ray referral, and BELIEVED when they observed I can speak in full sentences etc and I said "I'm compensating a lot rn."
Still angry, still losing it, still not here by choice. But fine. Today COULD have been more shit.
As a spoonie, we're feeling rather called out by the below video on spoons right now 
https://youtube.com/shorts/PiBjUXDUii8
Tried to do some basic tasks like taking down dry clothing and hanging up laundry. Had to pause and retreat to bed 
Continued thread
Hier mehr Infos zum Ursprung.
https://berlin-brandenburg.vdk.de/aktuelles/aktuelle-meldung/was-ist-die-spoon-theory/
VdK Berlin-BrandenburgWas ist die "Spoon-Theory"?Die “Löffel-Theorie” ist ein Gedankenexperiment, um die Lebensrealität von vielen Menschen mit Behinderungen oder chronischen Krankheiten zu veranschaulichen.
I just learned about the #spoontheory. And you should too. 
Meine ersten bestellten #Sticker für den #38C3 sind heute angekommen, Mini-Stickerbögen mit kleinen Löffeln. Die Idee hatte ich schon länger und jetzt endlich mal umgesetzt. Und ja, es bezieht sich auf die #spoontheory und bringt vielleicht ein wenig mehr Awareness und hoffentlich ein Lächeln bei anderen #spoonies.
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@Puschel
https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
Die #SpoonTheory-Metapher wird aber inzwischen breiter verwendet.
Ich selbst habe keine vergleichbare körperliche Erkrankung, aber aus psychischen und wohl auch neurodivergenten Gründen manchmal keine Reserven mehr. Dieses Bild, dass vermeintlich leichte Dinge (an manchen Tagen zB Geräusche, an anderen Niedergeschlagenheit, gerne auch mal beides zusammen) Löffel kosten und so die Reserven des Tages aufbrauchen. Und das ist mehr/anders als einfach Erschöpfung.
But You Dont Look Sick? support for those with invisible illness or chronic illness · The Spoon Theory written by Christine Miserandino - But You Dont Look Sick? support for those with invisible illness or chronic illnessPlease take the time to read Christine Miserandino’s personal story and analogy of what it is like to live with sickness or disability. Click HERE to download “The Spoon Theory” in PDF format. The Spoon Theory by Christine Miserandino www.butyoudontlooksick.com My best friend and I were in the diner, talking. As usual, it was very …
First time I heard about and referenced the Spoon Theory of disability was some point prior to December 2015. By that point I had accepted at least one of my disabilities.
Season Two Episode Six: Gentle Gardening on Limited Spoons with Erin Alladin
Erin Alladin’s new e-book “Gentle Gardening: A Guide for Uncooperative Bodies” is transformative, specifically covering the issues of gardening with chronic fatigue and the other complex disabilities that can accompany it, and reframing gardening as an accessible and fun activity. Ariel talks to Erin in this episode about her journey with gardening to where she is now, the book, a bit about gardening on Turtle Island as a settler, and tackling the gardener’s mindset and impostor syndrome that may come with it.
You can visit Erin’s blog at EarthUndaunted.com to learn more, and check out GENTLE GARDENING: A GUIDE FOR UNCOOPERATIVE BODIES. You can connect with her at TikTok, X, and Instagram @ErinAlladin.
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"what they need most is someone affirming that their right to their own choices is absolute"
I need to get this engraved onto a brass plaque and screw that plaque onto the inside of my forehead.
(I come from a family with a long tradition of "Free Advice Is Worth What You Pay For It", which disclaimer then serves as an excuse to dish out unlimited quantities.) (I may have some spiritual debt around that 
)
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