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#actuallyautistic

210 posts169 participants12 posts today

Es ist Autisti awareness Monat.

Mir wurde ewig eine Zwangsstörung diagnostiziert. Bis mein Psychiater mal ein paar Tests machte (Ordnungssinn) und meinte, das ist gar keine. Sondern aus dem Auti- Spektrum. Er sagte aber explizit, dass das keine Diagnose "Autismus" sei. Müsste extra gemacht werden.
Ich muss sagen, für mich persönlich (!!) sind Diagnosen echt unwichtig geworden. Ich hab über Diagnosen früher viel gelernt. Am meisten über selbst diagnostiziertes, was erst im Nachhinein "offiziell" war. Aber inzwischen kenne ich mich gut genug, selbst wenn ich jetzt auch noch auti dazu bekäme, es wäre nicht so wichtig.
Bei #kPTBS, #DIS lassen sich manche Zustände eh kaum auseinander halten. Und andere Wesen in mir? Müssten extra diagnostiert werden. :gribz_down:

Ich weiss aber, dass ich meinem Freundikreis sehr viele Autistis sind. Die sind alle toll. Sagt die hohe Anzahl auch was über mich Aus? Vielleicht.

#actuallyautistic

Viel Liebe an alle #neurodivers -en. :gribz_3:

@nerdfall

#Autismus kann so sein:
Du bist eigentlich nicht fit genug um nach längerer Krankheit wieder arbeiten zu gehen, ziehst dies aber stark in Erwägung, weil Deine langjährige Hausärztin plötzlich länger abwesend ist und Du es nicht schaffst zur sie vertretenden Kollegin zu gehen, da das dann zwar das richtige Gebäude, aber die falsche Ärztin ist. Weil Dich das so stresst, bekommst Du auch noch ätzende psychosomatische Symptome dazu.

Today became one of those days that won't happen. Got one boot on to go out and just crashed. Like a full on short-circuit, freeze in place malfunction. Gonna take a little cry and shut down for a bit, and then see if there something to salvage of the day afterwards.

Have to be able to go and do stuff tomorrow and Thursday, gonna need extreme spoon budgeting to make it through. Just have to hope there's no additional surprises this week.

#Autismus kann so sein:
Du funktionierst ganz gut unter Menschen und hast Spaß, dich mit Freunden zu treffen. Anschließend ziehst du dich für Tage, manchmal auch Wochen, zurück, um durch Selbstfürsorge deine Löffel (Energie) wieder aufzufüllen. Du genießt die Zeit alleine in deiner vertrauten Umgebung. Alles ist so, wie du es möchtest. Niemand stört dich. Du kannst dich voll auf dich selbst konzentrieren.

NTs seem to be incapable of not taking damn near everything about being #ActuallyAutistic as some sort of offensive attack.
Roommate/friend is once again irritated that I apparently don't like him.
No, I am exhausted. I'm not hanging out with anyone. I have enough of a lack of energy, I do my best to avoid interactions that could lead to obligatory chess.

This #AutismAcceptanceMonth, I'm lighting up my website and Mastodon server *red* in support of the #RedInstead movement – a movement by and for #ActuallyAutistic people to celebrate #Autism and to counter Autism Speaks' "light it up blue" campaign.

Autism Speaks is a horrible organisation that abuses and speaks over autistic people. Let's counter their blue lights, puzzle pieces, and ableist "defecit" propaganda. #NothingAboutUsWithoutUs!

More information + resources: mastodon.moule.world/@MOULE/11

Continued thread

#Autismus kann so sein:
Feiertage sind ein Problem für dich, weil sie deinen Rhythmus stören. Gleiches gilt für Verabredungen, Veranstaltungen, Termine - du brauchst Zeit, dich geistig auf ein Treffen mit anderen Menschen vorzubereiten. Jedenfalls wenn du dort sozial interagieren sollst.
Und nach so einem Termin bist du mehrere Tage „auf Tauchstation“ und wie verkatert, weil es dich so viel Energie gekostet hat (trotz netter Menschen)
#ActuallyAutistic

April ist der #AutismAwarenessMonth bzw #AutismAcceptanceMonth . Leider gibt es oft das Vorurteil, jemand könne nicht #Autist sein, weil er /sie arbeitet, sprechen kann, studiert hat, #Kinder / #Familie hat. Oder alle Autisten seien mathematisch begabt, orientierungslos im Freien, empathielos, ordentlich. Vergesst es. #Autismus ist ein #Spektrum. Fragt einfach Personen, die #ActuallyAutistic sind, was das für sie bedeutet und wie es sich anfühlt. Ihr werdet staunen.

@actuallyautistic A few weeks in, I'm starting to see: this is and will be a long journey requiring me to understand myself more deeply than ever before. If I do not, I will remain as disabled as I am now. When I have a small success, identifying a (seemingly) new trigger, I am now seeing it as an invitation to let something go.

Letting go is not easy but it is easier than confrontation. There will certainly be times to confront but I will choose those; confrontation requires more energy and has a higher cost.

Sensory unmasking is brutal. It is almost like learning how to ride a bike all over again but without training wheels. But I am learning.

@actuallyautistic

OK, my bash at something for Autism Awareness (or, as most of us would prefer, Acceptance) month.

I think so much of the problem why people can struggle to see us and to accept how we can be so diverse, is simply the language that is used to describe autism. And, perhaps, specifically, the English language. Because as everyone knows and to bastardise the original quote, English is basically a bunch of languages in a hooded robe, lurking in dark alleyways simply to mug other, more innocent, languages of their spare words.

It all too often this means that not only can the same word be used for different things, but that its meaning is all too often determined by the context and technical field in which it's being used. Different fields can use the same word to mean radically different things. But, unless you are aware of that, people tend to assume that it simply means what it generally and as far as they are concerned, normally does.

Autism is diagnosed.

The simple fact of the matter, is that nobody in history has ever been diagnosed with autism, either officially, or by themselves by being self-diagnosed. Not, in the way that most people understand the word, diagnosis. For them, it means a series of tests with definitive answers. Qualified people to administer and over-see those tests and in the end to interrupt, understand and give a clear-cut and unquestionable decision, backed up by those facts.

What we are is assessed and more specifically the likelihood of whether we fit within the current criteria for autism and the difficulties and therefore the support needs we may have because of that, is assessed. Well, in an official-diagnosis. Whereas self-diagnosis is a realisation, a recognition of the way so much is now explained, where it never was before.

To most people, there is a world of difference between a diagnosis and an assessment/realisation. Especially when it is used in a medical context.

Autism is a disability.

Well, this one is easier. Everyone knows what a disability looks like. In terms of autism, at best it ranges from "rain man", the idiot savant, to the absentminded, slightly, mad professor, or Sheldon Cooper look alike. But, all too often, it's the image and memory of all the children dragged across our screens by a certain well known charity/hate group, or during the height of the vaccines causes autism shit fest. It's the relative with genuine needs, or the relative of a friend of a friend, of a friend, who they have happened to have heard about once. It's not their teacher, or the friend they have who can't seem to hang onto a job and definitely not the person next door, who they nod to and talk to normally.

Autism is a spectrum.

People always think about a spectrum as a simple path from A to Z. A clear graduation of ability, or proficiency. As clear as the bands on a rainbow and as permanent. To think of it as the ever shifting and variable thing that it is as it applies to us, is understandably hard.

Autism isn't a disease.

But, doctors deal with it, diagnose it, it's clearly on the rise. Something must be causing it. If it's not a disease, then why are they involved?

I could go on. But, hopefully you get the point I'm vaguely trying to make. Language determines understanding and at the moment the language we use to describe ourselves, isn't really understood. Not in the ways that we want it to be and not because it's hard. But, because there are not enough stories out there that use it in the way that allows its meaning in this context to become more generally understood. The stories that include us and are from us and are not just about us. The stories that we can tell and show, often by simply being, that reveal what these words actually mean for us and that can allow others to understand and accept that, in the ways they can't, or struggle to, at the moment.

#Autism
#ActuallyAutistic

This year there are legislative elections in my country (Argentina), and it will be the 16th consecutive year I haven't voted. In 2011, when my current wife moved in with me in Mendoza, I went to vote in the primary elections, and when I got to the door, my autistic ass got angry because there were so many people, and I decided not to vote (I didn't know then that I was autistic and had just been released from a psychiatric hospital). Two months later, I didn't vote in the general elections either. I had already decided never to vote again and to break the social contract.
When my father asked me why I wasn't going to vote again (he has been active in politics almost his entire life), I replied: "I don't owe anything to a society that doesn't care about me."
I ruined my health forever and almost lost my life several times serving my country (ex-military, ex-police, etc.) because of the whims of son-of-a-bitch politicians.
Never again.

Diary of an ASD Squirrel. Day 520 , Monday 31/03/2025

Monday started just before 7am when a mix of Mrs S mooching around the house & the sun fighting its way thru the blinds woke me up.

Got breakfast & read for a little while with my coffee then cracked on with my chores.

Around 9am I finally got outside & the first job was to clamber up the ladder to fix a downspout on the guttering that had broken loose in the wind - the screw holding it in had worked itself loose so I had to re-drill the hole & use a bigger rawl-plug & a heavier screw to hold the fittings in place securely.

Having scared myself ½ to death (I don’t do heights very well anymore.) I spent 30 minutes or so cleaning some more gravel before I had to go & get ready to see the GP about my blood test results.
On the plus side every thing apart from my cholesterol levels were fine, the doctor I saw suggested trying some additional meds to try & keep it under control.

I need to get onto a healthier diet I think (he says having just ordered a pizza as a last birthday treat for Mrs S.P) but food is a coping strategy for me & my MH is still far from ideal.

I need to get out walking again as well soon, gotta fight the invisible wall that keeps me inside the house.

It doesn’t help that after an encounter with neighbours earlier in the year where they essentially judged me for not getting out of the house more I have that added level of anxiety too. It should get easier now with the lighter mornings, if I can get out immediately after breakfast then

Final Thoughts.

I need to get out walking again as well soon, gotta fight the invisible wall that keeps me inside.

It doesn’t help that after an encounter with neighbours earlier in the year where they essentially judged me for not getting out of the house more I have that added level of anxiety too. It should get easier now with the lighter mornings, if I can get out immediately after breakfast then I can avoid peopling.

I do seem to be going backwards at the moment though, although I am pleased that I managed to get that guttering fixed today.

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves